- Community (204)
- Uncategorized (71)
- Friends and Family (40)
- Newly Diagnosed (56)
- Side Effects (20)
- Coping with Cancer (64)
- Survivor Stories (54)
This post send by blueskies
Hey everyone ☺
Just looking for people who get it. People try, but they don\’t understand. I need to talk to someone who knows what I\’m going through. I\’m 19 and i have ALL.
This post send by Jessica Solsona
I think you guys are amazing!! 2 weeks ago we found out my daughter has ALL Leukemia and she is now for through chemotherapy and is so scared! We all are scared! I did not know too much about it but did my reading and know lots! If you can connect with Emilce Borbon would be great!!! Her Twitter is @Borbonemilce She really needs support- to help her cope and to feel that she is going to be ok!
You’re not officially registered unless you’ve signed up through this link to volunteer for this year’s Color Run.
We need your help! Gather a whole gang of friends or neighbors together to volunteer.
May 24th is the day most help is needed but even if you are running in the race, you can help the day before the race at packet pick-up. Please spread the word!
This post send by John Rowland
My daughter Harriet Rowland developed osteosarcoma in her left distal femur diagnosed August 2011. She has written a blog that has been converted into a book by a friend and the book has been very well reviewed. Hat records her story through treatment with humour and positivity and is a good model for teenagers to see a way to deal with their illness without too much negativity and also help friends of those with significant illness. Her book has been reviewed on New Zealand National radio http://www.radionz.co.nz/national/programmes/ninetonoon/audio/2586553/children\\\\\\\’s-book-review-with-john-mcintyre
It has also been recommended by filmmaker Peter Jackson in his Facebook page ?https://www.facebook.com/notes/peter-jackson/for-harriet/10152244838546558
Her blog is at http://myexperienceofwalkingthedog.blogspot.co.nz
The book is available at http://thebookofhat.com
“I have followed Harriet’s blog for a few years now, from Massachusetts, USA. I’m an oncology nurse, and I love to check in with her and her spirit; it reminds me why I do what I do, and it fills me with strength.” Laurl Matey (oncology nurse, US)
Unfortunately there is not a happy ending but as Hat says \\\\\\\"Life is not about waiting for the storm to pass. It\\\\\\\’s about learning how to dance in the rain\\\\\\\"
I hope you can read her book and learn how to dance in the rain
This post send by Anonymous
So I have had issues lately and I\\\’m just too stubborn and afraid to tell my parents. I\\\’ve been getting headaches and having balance issues for a while and I had mornings when I would feel sick and be fine the rest of the day. I get sudden ringing in my ears sometimes too. And I have recently had sharp pains on my side at night. I\\\’m afraid it could be something but I have no idea how to tell my parents because I hate being sick and going to the doctor. I dont know what I\\\’m going to do yet. I give props to all of you who are fighting. Stay strong!
This post send by ade
I AM A 19 YEAR OLD WITH STAGE 4 AGGRESSIVE HLRCC AKA KIDNEY CANCER. ITS VERY CHALLENGING FOR ME BUT I AM HOPING TO AT LEAST INSPIRE AS MANY PEOPLE AS I POSSIBLE CAN BEFORE THIS JOURNEY IS OVER. I HAVE A YOUTUBE CHANNEL TO THIS EFFECT. SO IF YOU NEED INSPIRATION TO KEEP GOING OR JUST SOME WORDS OF ENCOURAGEMENT PLEASE WATCH MY VIDEOS AND SUBSCRIBE. IT COULD HELP YOU OR SOMEONE YOU LOVE. http://www.youtube.com/channel/UCsfF0kfGYs3HcfXR57SNfVw
This post send by Andrea Vasquez
My name is Andrea, I\’m 19 and living with Leukemia. I was diagnosed on 7/05/2012. Months prior I had been feeling sick, but I still went to school and graduated HS. I am still doing treatment – chemotherapy and taking lots of meds. I am also Diabetic because of the meds. I also have a diagnosis of Cerebral Palsy (mild) which only affects my left leg/motor gross skills. I have just started college this Spring 2014. I want to share my story with others, help them, offer advice, and inspire them to never give up, have faith and never lose hope because we can beat this! Stay positive and God bless! (: Feel free to email me at the email listed above or on twitter @AndreaMVee Please continue fighting, thinking positive, and never giving up! This life is truly beautiful and we should live it to it\’s fullest intent! Looking forward to hearing from you!
This post send by Brigitte
Im Brigitte Huaman ; I\\\’m a high school student in the IB program and I need to do a personal project. One idea that came to mind is to help teens that are going through hard times and feel horrible about themselves to give them a boost of confidence and have a make over and make them feel good on the outside. I\\\’m all for the little happiness they can have and I can bring that. I\\\’m located in sacramento, ca , please let me know if you know anyone around me or anything could be beneficial to me thank you. Please contact me back, much love.
This post send by kim
Please read more about fasting prior to chemotherapy drugs that usually make you sick with nausea and vomiting and are followed by other things such as mouth sores or mucousitis. This worked for my son who without fasting had Emend and steroids and zofran and ativan but still threw up 5-8/day before fasting. With fasting he threw up ZERO!
HERE IS ONE ARTICLE:
Fasting can protect cells from stress and damage, such as oxidation or radiation, and has been found to protect healthy cells from chemotherapy. But can the practice also help fight cancer?
There is now evidence to support this idea, from research on cancer models of yeast and tumor-ridden mice, published today (February 8) in Science Translational Medicine. Starved organisms survived longer when treated with chemotherapy than those on a normal diet, and healthy cells were less likely to sustain damage.
“This ability to think about adding fasting in combination with chemotherapy is obviously exciting, and it definitely adds something to the arsenal of what we can do,” said Trudy Oliver, who researches cancer resistance at the University of Utah but was not involved in the study.
Chemotherapy works by attacking rapidly dividing cells, a hallmark of cancer. Previous studies suggested that fasting before treatment could help protect healthy cells by slowing their growth even further. But one question loomed in researchers’ minds: “What happens to the cancer cells?” said study co-author Valter Longo, who studies the molecular mechanisms of aging at the University of Southern California. If fasting slowed down cancer cell growth enough to reduce the effectiveness of chemotherapy, “this would be a problem.”
Initial results in cancer-mimic yeast and cancerous mammalian cell lines provided Longo with evidence that starvation slows cancer growth and also enhances healthy cell survival when faced with chemotherapy. These results encouraged Longo to move into mouse models. “If it doesn’t change from yeast to mammalian cells, we figured that it is something so conserved and fundamental it’s going to apply to humans too,” he said.
Longo\’s team studied a variety of mouse models. Mice were injected with both human and mouse cancers, including breast cancer, melanoma, and the nervous system cancer neuroblastoma, among others. The researchers also tested several types of chemotherapy drugs. And each experimental combination was subjected to three treatments: just fasting, by being given only water for 48–60 hours prior to treatment, just chemotherapy, or fasting and chemo together.
Results varied by cancer type and treatment, but overall the combination of fasting and chemotherapy reduced cancer growth significantly, and starved mice survived far longer than their non-starved counterparts. For example, melanoma metastasis was found in 40 percent of mice given just chemotherapy, 20 percent under starving conditions alone, and 10 percent of mice that underwent chemotherapy and fasting.
“The surprising part was that, for several cancers including breast cancer, fasting cycles alone were as good as chemotherapy,” said Longo. “We expected some delay but not an equivalent effect.”
Gene expression assays and molecular analyses suggested that, in cancer cells but not healthy cells, fasting and chemo together induce a 20-fold increase in DNA damage, an increase in oxidative stress, and higher incidence of cleaved caspase 3, a protein that induces cell death.
Longo hypothesizes that, while normal cells are well-equipped to deal with starvation by slowing their metabolism to just essential activities, cancer cells “became better at growing and growing and worse at adapting to new conditions.” When cancerous cells are faced with a hostile environment, such as starvation, they become weak and shut down. “And, when they become weak, chemotherapy has an easier time,” he added. However, he emphasized, this is still a hypothesis.
While Oliver finds the results “provocative,” she would like to see the molecular mechanisms fleshed out more, especially because the pathway is so “counter-intuitive.”
“You might think it would work the other way: that chemo is not going to work as well anymore if you slow down cancer growth,” she said. Future studies should try to elucidate the mechanism and study the phenomenon in more in vivo cancer models to “show us the effect directly on proliferation as a result of that fasting,” she added.
There are already three clinical trials— one of which is at the University of Southern California—underway studying the combination of fasting and chemotherapy in human patients.
Longo suspects that the human equivalent of 48–60 hours of mouse fasting is about five days, based on glucose and growth factor concentrations. Five days is a long time, noted Oliver, and fasting “may be rough for cancer patients who are already going through a lot.” But uncovering the mechanism could lead to better solution, she added.
“It might be that people don’t need to starve to do the same thing, if they can take a new drug with chemotherapy that mimics starvation but is not as painful as starvation,” Oliver said. “That underscores the importance of finding the mechanism.”
C. Lee et al., \"Fasting cycles retard growth of tumors and sensitize a range of cancer cell types to chemotherapy,\" Science Translational Medicine, doi:10.1126/scitranslmed.3003293, 2012
This post send by Johnathon Yeager
My name is Johnathon, and I was diagnosed with stage 4 neuroblastoma cancer on 07/07/07 at the age of 14. Since then I have done almost every treatment out there, and at the age of 20 im still fighting, having relasped 3 times. It certainly has been a rough journey, one that has defined my life and altered the person i am today. I am grateful to be alive each day, as I thank God and the ones around me with all there help. Cancer sucks, and i wish i did not have it, but everyone has there own struggles and there own way to persevere. This website is a great way to connect with other individuals and Im glad there are others out there who can understand how hard this journey can be. If anyone out there needs help, advice, or just wants a friend to talk to, maybe share some battle stories and count how many surgery scars we have then please message me! My email is email@example.com Also anyone in the upper midwest specifically north dakota or minnesota, it would be great to fight together! Cancer sucks and i wish it upon no one. just stay strong and fight on! Positivity is key to beating cancer and becoming a survivor. Past survivors are truely an inspiration to me and i hope i can inspire others to stay happy. facebook me as well! Johnathon Yeager be my name! See yall later and keep kicking butt!