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NG Tube??

October 13, 2014 by  
Filed under Uncategorized

This post send by Luke Baumgardner

Hello all. I am a 19 y/o male who was diagnosed with AML about two months ago. I am currently in the hospital receiving my second round of chemo. Unfortunately, I have been quite nauseous this round and have not been able to eat. I have also lost a considerable amount of weight. Because of this the doctors want to insert an NG tube in so I can get the adequate nutrition. I have a full understanding of how it works, I am just nervous because my nose/throat area is pretty sensitive and I don\\\’t think I will react well to it. What have other people\\\’s experiences been with NG tubes?

Scared I May Have Leukemia?

October 8, 2014 by  
Filed under Newly Diagnosed

This post send by Meghan

I am 17 years old and currently a senior in high school. Recently I have had a lot of strange symptoms that have led me to believe I may have some form of leukemia. The most noticeable symptom is bone and joint pain. All throughout my body, my bones and joints are aching. This has been happening for the last couple months or so. A little over a month ago I got a stress fracture in a bone in my foot with no exact injury. I am in dance but there was no day that I can recall that I injured it. It just started hurting. I have also been feeling extremely exhausted. It\\\’s not just a feeling of being tired or not getting enough sleep. I get plenty of sleep and I feel like I have absolutely no energy to do anything. I am in pretty good shape but now just walking up the stairs will get me out of breath. I have also been getting sick more often. Right now I currently have a respiratory infection which doesn\\\’t seem to want to go away even with antibiotics and rest. I also have had a couple bruises that I don\\\’t recall getting. They tend to stay for a while but none of them are too big. I just overall feel horrible. I can tell that something is wrong and I was searching my symptoms and leukemia came up. Since then I have been researching symptoms and these all seem to correlate. When I was at the doctors for the respiratory infection, I brought up my bone pain. She said once I\\\’m feeling a little better to get bloodwork done if my pain isn\\\’t going away. She thought it may have been due to me just being sick. I know that this isn\\\’t true because I am feeling better with the infection but my bones keep hurting more and more. Everything from my fingers, toes, knees, hips and shoulders and back hurt. Even sitting here typing this out is getting extremely painful. My dad is scheduling an appointment for bloodwork but I am emxtremely scared of the possibilities. My mom is currently going through treatment for breast cancer and my parents don\\\’t need me to have something like that too but I fear I may. Any advice?

Hi

October 7, 2014 by  
Filed under Community

This post send by Sey

Hi everyone i am a bit confused, i get constant infections my joints ache and i am constantly out of breath and never seem to have any sort of energy.I literally never get hungry and when i eat a little bit get so full that my abdominal bloats and i have to vomit to feel a little bit better, and every single morning i have to go to the toilet for diarrhea and i never know what causes it. I told my doctors about all this but they never seem to think anything of it.

Pioneer H.S. Red Ribbon Week

September 17, 2014 by  
Filed under Community

This post send by Melat Birbo

Hello, this is Melat from Pioneer High School\\\’s Service Learning Leadership class. We would love to have your agency attend our Red Ribbon week in order to inform our students about cancer. The days we have open are:
Tuesday, October 14 from 11:50 AM- 1:00 PM for our Tobacco Awareness Day.
Thursday, October 16 from 12:20PM-1:15 PM for our Cancer Awareness Day.
Friday, October 17 from 11:50 AM- 1:00 PM which will be a wrap up of the week (promoting safe driving, cancer awareness, and drug free lifestyle).

Although, Cancer Awareness Day would be the ideal day for your agency to attend, you are welcome to come the other days instead or in addition.
During this event, students will be visiting a table we have set up for you. All that is needed is some sort of visual (poster/board) that has information or an activity to spread awareness. Please email me back ASAP and specify which day works best for you.

Thank you so much, we really hope you are able to visit!

helping a friend

July 31, 2014 by  
Filed under Friends and Family

This post send by msv

i have a friend that because of a tumor that was remove now has a little bit of hair and doesn\’t have the money to get the hair she likes.I don\’t have much but i will help her with what i can she will be turning 16 and will like her to be happy if their is anyone out there who will help please e-mail me.i have told my parents to but my sweet 15 on hold that i rather help a friend and they said the most of the money has been spend so please help me so that we could all smile againg

Teen Support Group Denver Area

July 14, 2014 by  
Filed under Friends and Family

This post send by Karyn White

My son is 14 years old and has ALL. He just finished intense therapy trying to get back to normal life but would like to meet some other people part of the cancer community.

16 with Ovarian Cancer..

July 7, 2014 by  
Filed under Newly Diagnosed

This post send by Chloe

Hey, I\’m 16 and I was diagnosed with Stage 1 Ovarian Cancer when a couple of weeks back.. It all started with me having stomach pains and being bloated a lot after eating, doctors just took it that my bowels we\’re playing up. Until suddenly one night my mum and I went through trauma, I was foaming at the mouth whilst going in and out of consciousness on the floor of my bedroom and followed to throw up a thick orange liquid and thin yellow liquid before passing out. Mum took me to the walk in center and after a Ultra Sound they found a 20cm cyst on my ovary. I had surgery a week or so later and they removed the cyst along with the no more functioning ovary and tube, I recovered wonderfully. My specialist reassured my family and I that the cyst was not cancerous and he admitted he was 99.9% sure. So on the results day of my cyst we had no worries but sadly the news came back that they found cancerous cells in my cyst and I will have to go through 6 sessions of chemotherapy in the space of 18 weeks, one dose every three weeks. I\’m currently waiting on my first appointment for chemo and are having numerous scans and fertility advice between it. I have missed a lot of my GCSE exams due to being so ill and I have to admit it\’s tough but I\’m getting through it. My family, friends and boyfriend are really supportive but I just feel really alone in the fact that I have Ovarian at such a young age. I want to talk to other people who are going through or have been through it. I just want a little reassurance in the matter.. It\’s hard to keep such a smiling face sometimes when everything gets the better of me, but it\’s okay. Thank you for reading and I wish you all the best in everything, we will get through this! xxxx

Life changes in an instant

June 5, 2014 by  
Filed under Newly Diagnosed

This post send by Danika Bergeron

June 2 2014. I was diagnosed with thyroid cancer on June 2 2014. And now I feel like my world is crumpling beneath me. All I do is wait for doctors to call and appointments to be made for me to be cut open. My parents telling me I\\\’m strong but I don\\\’t feel strong I feel like there\\\’s this weight crushing me and I can\\\’t breath. I haven\\\’t told any of my friends yet. I don\\\’t know how to. I can\\\’t talk to them because they don\\\’t understand. Something inside of me is trying to kill me and I feel alone

Lost

May 27, 2014 by  
Filed under Coping with Cancer

This post send by Savannah Tilton

Hi, I have posted before but not for a very long time. For those of you who have not heard my story before, my name is Savannah and i was diagnosed with Cholangiocarcinoma on 3/25/13 one week after my 17th birthday. I am now 18 and still have stage 4 Cholangiocarcinoma, I have not gone into remission at all in the past year, I have been on extremely harsh chemo and am now being told my ONLY chance of survival is to get a liver transplant or else i will die in the next year. For those of you that dont know (which will probably be most, because this is a very very rare cancer to have especially at this age) Cholangiocarcinoma is a liver/galbladder cancer that is normally seen in 50-60 yr old men. I am a 18 yr old female and the second youngest documented case. Most dont make it past 5 months at this stage and I am going on a yr and still functioning. Facts like that use to keep me going and keep me cheerful, but as time goes by chemo gets harsher, and the chance of transplant gets slimmer. I find it hard to stay happy all the time unless i try to keep my mind off of it. I think I am losing hope, I think I am losing it all together. I see more and more that the chemo is affecting my mind set (which my doctors told me may happen) but I cant pay attention and here lately my mood swings have been more often. I see it affecting my family and my relationship with my boyfriend. I feel more and more that he should be with someone else and sometimes that he wants to be. No one realizes that sometimes I have outbursts that have nothing to do with my cancer because of my cancer. And the fact that no one around me has cancer and that they cant relate makes it worse. But thank you for reading. And thanks for the feedback if you leave some.

Getting Involved

May 24, 2014 by  
Filed under Community

This post send by Steve Phillips

Hello, My name is Steve and I\’m 21 years old from the Rochester NY area. Today I completed my first color run, and although i didn\’t know what to expect, I\’m so so so glad i did it. Starting off all i was focused on was running and having a good time. now having completed the run and listening to the speakers up on stage from Teens Living with Cancer, I realized I\’m wasn\’t focusing on the right things. Now i realize and know in my heart i want to do what ever it takes to get involved and help those in the fight of their lives. I figured this would be a good start to try and get involved. I\’d love to reach out and work with those teens struggling and talk, listen, engage and enjoy time with them. Im incredibly inspired to impact the lives of those teens, as i can imagine there in need of some inspiration at times as well. if i can be a help, or lend a hand by working with various young adults, please contact me! Lets keep working together to find this cure! With sincere love, Steve Phillips

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