rhabdomyowhatever

hi, im alyssa, and im 15 years old and i have rhabdomyosarcoma and i am looking for someone to relate to. i. am. so. bored. i have seen, like every movie there ever was, and have done nearly EVERY SINGLE CRAFT at the damn hospital and my friends dont exactly have cancer and i am looking for someone to RELATE. its not like i can just look up on my fone, ‘hey maybe i should text some of my cancer buddies’ NO. when you walk down the street, you dont exactly see people, teenagers my age, walkin around and you wave to them like, ‘sup, leukemia?’ ‘yep’ AGAIN, NO. and since i’m in the middle of treatment and have my medications down pat, i’m like nyan cat. flying in the sky. singing all the time. and thats when i DONT have them drugs. so, all im asking for, is some one to talk too. hell, im so desparate that i would talk to even an online pervert if he was intresting. BUT DONT GO GETTIN IDEAS. and i dont want a sympathetic adult or a helpful friend. AW HELL NAW did you just hear me? RELATE PEOPLE. anyways, this iis too fucking long. oh yeah and those who are not so bright in the head, i guess this is a “PG” message. yes. i went there. anyway, goodbye

January 15, 2012 by  
Filed under Uncategorized

  • Leah Shearer

    Alyssa,

    There are some messages on here that just make me stop, put down my coffee and read.
    Yours was one of those posts, Alyssa.

    First things first…you have come to the right place. Many teens here to understand just what you are going through. I totally get what you said– you don’t just run across other cancer survivors on the street as part of a daily routine. That’s what’s great about the TLC (Teens Living with Cancer) website. So feel at home and look through the site…there’s even more to offer than this message board.
    Please don’t talk to online perverts, I beg of you. :)

    You Alyssa, are clearly one spunky young lady…that comes across in your post. Keep using that spunk to get through this…humor sometimes can cut through a very difficult time.

    Being the funny gal you are, I thought you might appreciate one of our youtube videos…if you are a Jay-Z fan you might especially like seeing our spoof. Check it out.

    I bet it beats hospital crafts. Tell me what you’ve made so far? Any macaroni jewelry?

    http://www.youtube.com/watch?v=E9k01KfWk4o&list=UUlyAobCNOEpyLfAIitKaaeA&index=14&feature=plcp

    Leah Shearer
    TLC Program Coordinator
    Rochester, NY

  • Leah Shearer

    Alyssa,

    There are some messages on here that just make me stop, put down my coffee and read.
    Yours was one of those posts, Alyssa.

    First things first…you have come to the right place. Many teens here to understand just what you are going through. I totally get what you said– you don’t just run across other cancer survivors on the street as part of a daily routine. That’s what’s great about the TLC (Teens Living with Cancer) website. So feel at home and look through the site…there’s even more to offer than this message board.
    Please don’t talk to online perverts, I beg of you. :)

    You Alyssa, are clearly one spunky young lady…that comes across in your post. Keep using that spunk to get through this…humor sometimes can cut through a very difficult time.

    Being the funny gal you are, I thought you might appreciate one of our youtube videos…if you are a Jay-Z fan you might especially like seeing our spoof. Check it out.

    I bet it beats hospital crafts. Tell me what you’ve made so far? Any macaroni jewelry?

    http://www.youtube.com/watch?v=E9k01KfWk4o&list=UUlyAobCNOEpyLfAIitKaaeA&index=14&feature=plcp

    Leah Shearer
    TLC Program Coordinator
    Rochester, NY

  • sarah

    Hey, I don’t know if you are on here anymore but Im 19 years old and I have had my skin cancer come back 5 times! Temple, neck, breast, and finally stomach as of 2 months ago…It fucking sucks. All of my friends don’t know what to say and feel like they have to be gentle around me now. I relate. Are you in US? Canada? Im in Canada…its winter and it is the WORST time to have cancer, Im always cold lol. Its 4:25 in the morning and I am wide awake. I hope your out of the hospital. Is it your first time getting cancer? I am out of school staying home all day while I have treatment……i.am.so.bored. if you want to talk you can add me on Facebook if you want. I would feel weird putting my email on here :S

  • Anonymous

    heey .. I’m also 15 and I know what it’s like to not be able to fully talk to your friends and have them actually know what your talking about ! It sucks & they can’t relate AT ALL . I had cancer last year but am cancer free for about 6 months now . anyway Im pretty sure I did every craft at the hospital too ! ahahahaha but seriously if ya wanna talk or anything about whatever reply to me and I’ll give you my email or facebook. Whatever works
    – katie

  • http://www.facebook.com/profile.php?id=694905214 Arturo Khüne

    Alyssa I want to help you please add me at Facebook please facebook.com/arturokhunemx I hope give you a better live.

  • Bryn

    Hey Alyssa! I’m Bryn- I’m sixteen and one of the core members of the TLC group! I am almost four years in remission from having Hodgkins Lymphoma. You are so right about it getting boring. And just so you know, I totally walk down the street and say ‘sup leukemia?’ to my friends ;)
    Anyway if you ever want to talk about anything you can email me at bmugnolo@gmail.com. I hope I talk to you soon!

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