Post-Radiation Sarcoma

So I just had a recurrence after 8 years of being cancer free. I was originally diagnosed with Synovial Sarcoma in 2002, and was cleared for remission in 2003. This summer I found a tumor n ear my original one (right knee) and had it biopsied, radiated, and removed. Now I’m facing 6-8 months of chemo.

The tricky situation is that the biopsy tentatively revealed that I had the same cancer as before. However, after they removed the tumor and analyzed it, they found that it was a different form of cancer known (in layman) as Post-Radiation Sarcoma. Basically, the radiation I received in 2002/03 caused a completely separate mutation and cancer to form 8 years later.

Everything in my prognosis looks good, and I suppose it doesn’t change things very much, although I may have opted for amputation if I knew the true circumstances of the tumor. Frankly, I could opt for amputation now, if I so decided.

I’m wondering if anyone else has dealt with this kind of tumor. It’s really confusing to think about…. I don’t know whether to be relieved or upset. On one hand, it’s a good thought to think that there weren’t Synovial Sarcoma cells hanging out in my leg for 8 years. On the other, I’m now afraid of what radiation therapy can do to me in the future (even though they’ve implemented new technology in that field).


December 7, 2011 by  
Filed under Uncategorized

  • Anonymous

    Hi Evan, my names katie and i also had a tumor that was a synovial sacoma just last year. Also i had recieved 7 rounds of chemo, radiation therapy for 7 weeks, and then surgery similar to you. I remember when i was going to start radiation they told me about the possibility of a different cancer forming because of this treatment. Seems counter productive right ? I wanted to know, if you get this, how everything went seeing how this type of thing might face me in the future. I hope everything is going well.

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