Thyroid Cancer

Hey guys, I just now found this site, it looked cool so I decided to post. My name is Justin Anderson I am in college right now. Five years ago, the beginning of 8th grade I was diagnosed with Medullary Thyroid Cancer. I went through 2 surgeries in the first month in order to try to remove the whole thing. Then two years later I had to have surgery again because it moved to my lymph nodes, which I have to say was probably one of the more exhausting ones. I have to have my blood tested every 6 months because they know I still have it and its steadily rising, so I believe it might be spreading. I live with, but I try not telling people about except for close friends. I have been doing research a bit on my form of thyroid cancer and my thyroid doctor also told me that mine is apparently very rare at my age and so I was wondering if anyone else is diagnosed with the samething. Also I would be welling to help out anyone with questions to the best of my ability.

Justin

September 25, 2011 by  
Filed under Community, Coping with Cancer

  • http://www.facebook.com/LeahAShearer Leah Shearer

    Hi Justin,

    Thanks for sharing your story. I am thyroid cancer survivor too. I am a survivor of both (papillary carcinoma) thyroid and Hodgkins lymphoma.

    It’s good that you are taking responsibility of your situation and seeking out information. Remember though, that to take internet sites with the littlest grain of salt. Combining what you find yourself with what you know through doctors and other experts is a good way to balance out what you learn.

    It seems easy to say hang in there—but it sounds like you are trying to do just that.
    And thanks for offering to help others and answer any questions.

    Where are all our thyroid peeps at? Wanna chime in?

    TLC Program Coordinator
    Leah Shearer

  • http://www.facebook.com/eruscher Evan Ruscher

    ^^^^

    That’s the best advice you can get regarding internet research. No 2 people are ever in the exact situation, so it’s very important to rely on what the experts are telling you in conjunction with what you find out on your own.

    I don’t have Thyroid cancer, but my situation has some similarities to yours. I’m 24 and have Synovial Sarcoma, which grew in my right knee. It’s quite a rarity in terms of cancer. I also have the distinction of being a recurring patient, which just happened recently. After surgery, chemo, and radiation, I was in remission (age 16) and remained cancer free for 8 years. Then, out of the blue came a tumor on my right leg this summer. It’s as simple as a couple of cells being out of the surgical site and surviving the chemo…. but the fact that it laid dormant for 8 years is weird. I’m sure long after my treatments are over that I will be an odd statistic on the homework assignment of an aspiring Oncologist at the U of R or some other college.

    Finding info on my type of cancer will date you back to the 1980’s, typically… so it’s hard to apply that same information to my current situation. Last week I had to decide whether or not I wanted to amputate my leg. According to the information on the internet, I should have… but the past 8 years has brought about new forms of radiation treatments, and the information online is anywhere from 5 to 30 years old.

    I also understand where you’re coming from as a young adult. Most of the friends I made in college didn’t find out about my experience with cancer until months after we got to know each other. I’m happy to share every detail with them, but it’s not something I like to throw out there when I’m just getting to know someone. It’s not necessarily something that I hide, I just don’t want people gaining that knowledge about me until they know how I am as a person.

    Best of luck to you.

  • Alyssa Edwards

    Hey,
    My name is Alyssa I am now 17 but, I had Papillary Thyroid Cancer when I was 15. I just was kind of wondering, how they found your cancer?

    • http://www.facebook.com/profile.php?id=1090454531 Justin Anderson

      Hey,
      My neck was really stiff and I couldnt move really well and also when I looked in the mirror I could see a mass on my neck and so when I went in they had me do an xray to see where the mass is coming from and then they took a biopsy of it to find out. How did they find your cancer?

  • Brittanyfraser17

    hey, my name is Brittany and i diagnosed with Parathyroid cancer i was 16 at the time. but I’m 18 now and i thought that i should tell you that your not alone. also i hope everything is looking brighter and your future is fulled with great things!

  • Brittanyfraser17

    hey, my name is Brittany and i diagnosed with Parathyroid cancer i was 16 at the time. but I’m 18 now and i thought that i should tell you that your not alone. also i hope everything is looking brighter and your future is fulled with great things!

  • Brittany

    Hi Justin, I’m very new to this as well.. basically the same situation except I’m still awaiting my surgery dates, my cancer is in my thyriod and spread to my lymph nodes.. I will recive surgery to get both taken out. How do you cope with things? Like get through day to day? I feel like some people don’t understand.

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